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A mother whose child has had a cochlear implant tells Laura Mauldin why enrollment in the sign language program at her daughter’s school is plummeting: “The majority of parents want their kids to talk.” Some parents, however, feel very differently, because “curing” deafness with cochlear implants is uncertain, difficult, and freighted with judgment about what is normal, acceptable, and right. Made to Hear sensitively and thoroughly considers the structure and culture of the systems we have built to make deaf children hear.
Based on accounts of and interviews with families who adopt the cochlear implant for their deaf children, this book describes the experiences of mothers as they navigate the health care system, their interactions with the professionals who work with them, and the influence of neuroscience on the process. Though Mauldin explains the politics surrounding the issue, her focus is not on the controversy of whether to have a cochlear implant but on the long-term, multiyear undertaking of implantation. Her study provides a nuanced view of a social context in which science, technology, and medicine are trusted to vanquish disability—and in which mothers are expected to use these tools. Made to Hear reveals that implantation has the central goal of controlling the development of the deaf child’s brain by boosting synapses for spoken language and inhibiting those for sign language, placing the politics of neuroscience front and center.
Examining the consequences of cochlear implant technology for professionals and parents of deaf children, Made to Hear shows how certain neuroscientific claims about neuroplasticity, deafness, and language are deployed to encourage compliance with medical technology.
- Sales Rank: #91420 in Books
- Published on: 2016-02-29
- Original language: English
- Number of items: 1
- Dimensions: 8.50" h x .90" w x 5.50" l, .0 pounds
- Binding: Paperback
- 224 pages
About the Author
Laura Mauldin is assistant professor of human development / family studies and women’s gender and sexuality studies at the University of Connecticut.
Most helpful customer reviews
1 of 1 people found the following review helpful.
Thought provoking
By Doctor Mom
Fabulously and well researched, and written. Anyone in the field of audiology, otolaryngology, or who knows, loves or is raising a deaf child should take a look at this book. Both thought-provoking and accessible to the professional and layperson.
10 of 10 people found the following review helpful.
Honest look behind the "miracle" of cochlear implants
By J. Hill
This book is a great resource for people who are familiar or unfamiliar with the competing narratives of deafness: the medical narrative to support the need for a miracle cure and the socio-cultural narrative that emphasizes the linguistic and cultural rights of the Deaf community. The author did a wonderful job in summarizing the complicated narratives in her introduction, but she made an important (and controversial) point that the readers should take note: both narratives reject disability as one attribute that falls out of the acceptable range of human diversity. The medical narrative may make sense in this case since the goal is to rehabilitate people and bring them closer to the norm; but with the socio-cultural narrative, deafness is seen as part of human diversity but not as a disability since deaf people have a community, a history, and a language in order to function as human beings. The socio-cultural narrative is useful for the Deaf community to frame their reality this way so they can maintain their culture and language against the oppressive nature of audism, but by rejecting their connection with disability, it does very little to support the reality that disability studies scholars, activists, advocates, and allies involved in the disability rights movement have been pushing for decades: that disability is also part of human diversity and that the society must end its oppression and discrimination of people with disabilities. This is especially important because about 90% of deaf and hard of hearing people with or without additional disabilities were born to hearing families (meaning family members who are not deaf and not familiar with sign language and Deaf culture) and the majority of these families typically do not question the ableist ideology that having a disability (including deafness) make their children different (read: not normal) and they must do something about it. This is what the book is about: hearing parents who unexpectedly bear deaf children who are not like them and they need support and guidance from people who supposedly know best - the medical professionals on hearing loss and speech and hearing rehabilitation. What I appreciate about this book that the author doesn't put anyone in a negative light or paint the medical professionals as the enemies of the Deaf community. Everyone in the book seem to be sincere in their attempts to provide the best future for deaf children. What the author is trying to point out is that the ideological intersection of gender-specific parenthood, ableism, medicalization, and technology defines what it means to be "normal"; it explains why people do the way they are doing when it comes to children with their hearing abilities that do not fit with the norm. The book does contain its limitations as the author discusses in her introduction: it follows a small number of families and all of the medical staff in the book are at one medical center in New York City. It may not represent the majority of the families in the rest of the country and the world, but it offers useful and honest insights on the reality that the families and their deaf children with cochlear implants are going through today.
4 of 4 people found the following review helpful.
A new and necessary perspective on cochlear implants
By Amazon Customer
This book focuses its investigation on an often overlooked population in the cochlear implants: mothers (mostly, but some fathers too). While much publicity on CIs are from the perspective of the medical profession, which tout this life-changing technology for "fixing" deaf children, Mauldin treats the social pressures on parents (again, usually mothers) to conform to [structures] that at root are ableist and to a technology developed with profit in mind as much as the welfare of children.
Using the lens of Disability Studies, Mauldin is able to frame deafness not as a problem to be fixed (the majority view of the medical profession) but as a site of ongoing political, social, medical, and economic struggle. This frame allows Mauldin to chart the dynamics of power at play in the medicalization of deafness and how several forms of gender and able-bodied prejudices are deeply encoded in the medical services treating deafness and embodied in the technology itself. This is an excellent sociology of institutions and of technologies of power. Sure to make waves.
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